June-ish 2020
On this Page
Welcome to the somewhat tardy June 2020 issue of The Portal
Periodical, which brings you updates on changes and additions to
Portal, alerts you to relevant news & information, and solicits feedback to help
us improve the Portal. We'd blame our lateness on the pandemic, but, well, you've
heard that before. Want to get in touch? Please provide Feedback.
COVID-19 Information
We continue to update our COVID-19 information page on the Portal with links to accurate,
credible resources for information about the global and national situation, as well
as local information in partner regions. Our Services Directory offers information about a variety of potential
service providers, including respite care, emergency food and financial assistance,
and housing information. Please contact individual providers to confirm their hours
and programs before visiting as many may have adjusted operations at this time. We
hope you all stay safe and healthy.
Custom Lists
We've recently made updates to our lists to make them even easier to use.
Improvements include clearer information about what list you are adding to and new
options to add unsaved notes to a list for printing. As always, we ask that you not
include personal health information (PHI) or your personal information in list names
or descriptions.
Need help getting started? Click the link image in this section to see a
sample list. You can also check out our Help with Lists page and start building custom lists for yourself or
your patients!
Meet the Portal Staff: Mindy Tueller
Mindy has been adjusting to working from home. Upsides include more time with her
two cats, and that she can be around her two teenagers while they are largely stuck
at home this summer. Downsides are that her cats have to deal with people all the
time now, and that her two teenagers are largely stuck at home with her this
summer.
New and Updated Content
New and Updated Diagnosis Modules & For Professionals Content | New and Updated For Families Content |
---|---|
Anxiety Disorders | Appealing Funding Denials |
Autism Spectrum Disorder | Apps to Help Kids and Teens with Anxiety (New!) |
Cornelia de Lange Syndrome | Cornelia de Lange Syndrome (FAQ) |
Fragile X Syndrome | Groups and Therapies |
Hearing Screening | Healthy Relationships |
Home Ventilators (New) | Planning for Emergencies |
Postpartum Depression Screening (Formerly Maternal Depression) | Respite Care |
Sexuality & Children with Disabilities (New) | Transition-Related Legal Issues |
Spinal Cord Injury | Turner Syndrome (FAQ) |
Tourette Syndrome | Understanding the Affordable Care Act (ACA) and the Health Insurance Marketplace |
Toxic Stress Screening | |
Tyrosinemia Type 1 |