June 2019
On this Page
The Portal Periodical brings you updates on changes and
additions to the Portal and relevant news & information. As always, we welcome
Feedback.
Services Improvements
The Services Directory and Service Providers are an important part of the
Portal for many users.
In fact, over a third of Portal visits start somewhere in the Services Directory! The Portal team, in collaboration with our
state partners, is constantly working to improve your experience with Services. This includes updating and adding Service
Providers; managing the Service Categories that are used to organize the Services Directory and link to Service Providers
from Portal pages; and improving Services Directory navigation.
Recent improvements include:
- Expanding our Nationwide Services Directory and displaying these Service Providers in some state's Services Directories.
- Improving services search to help you find additional results based on Service Categories.
- Improving our Service Categories -- we've recently changed some category names and we're currently gathering expert input to guide improvements in our Mental Health/Counseling categories.
Meet the Portal: Al Romeo
Recruiting Usability Evaluation Participants
The Medical Home Portal needs your help to find parents of children and
youth with special health care needs who can help us improve their experience when
they visit our website to find information and services. No prior exposure to or use
of the Medical Home Portal required. If you work with or are the parent of a CYSHCN
who might be willing to spend 20-30 minutes for a brief interview and an online
sorting activity, please reach out to Geoff Anderson (geoff.anderson@utah.edu) or
Dan Gillen (dan.gillen@utah.edu) at the University of Utah. Participants will be
given a $25 Amazon gift card for their assistance. Remote interview options
available.
New and Updated Content
New & Updated Diagnosis Modules and Newborn Disorder Pages | Other New & Updated Clincial Content |
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Diagnosis Module: 22q11.2 Deletion Syndrome | Calcium and Vitamin D |
Diagnosis Module: Biotinidase Deficiency | Caring for Burn Injuries in Children (New!) |
Diagnosis Module: Childhood Absence Epilepsy | Missing link with id: 88d3be56.xml |
Diagnosis Module: Leukodystrophies | Missing link with id: fd17b7cd.xml |
Diagnosis Module: Mucopolysaccharidosis Type I (MPS 1) | Missing link with id: 479f4eb8.xml |
Newborn Disorder: Missing link with id: f19fcea6.xml | Oral Health (New!) |
Newborn Disorder: Missing link with id: a921f080.xml | Puberty and Pubertal Variations (New!) |
Newborn Disorder: Congenital Adrenal Hyperplasia (CAH) | Skin and Wound Care for CYSHCN (New!) |
Newborn Disorder: Spinal Muscular Atrophy (FAQ) (New!) | Treating Diaper Rash (New!) |
New and Updated For Parents & Families Content | |
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Appealing Funding Denials | Parent FAQ: Childhood Absence Epilepsy (FAQ) |
Education | Parent FAQ: Down Syndrome (FAQ) |
After High School Options | Parent FAQ: Spina Bifida (FAQ) |
Home Retro-fits | School Transitions |
Managing and Coordinating Care | Switches |
Parent FAQ: Autism Spectrum Disorder (FAQ) |